On Developing PTSD… After Writing Characters With PTSD, as a Schizophrenic

There are a lot of complaints about how writers (and other creators) portray mental health, and perhaps one of the most mentioned issues is PTSD.

I’ve been writing characters with PTSD for about a decade. But I didn’t have PTSD of my own until just a few years ago.

Looking back over old works—while there are things I would do differently just because I’ve grown as a writer—I don’t find my portrayals of PTSD that inaccurate. My research was thorough, including the personal experiences of others. The insertion of fictionalized personal anecdotes of symptoms and some of the emotional charge, as in the after the fact pieces, is missing. But I don’t feel dissatisfied with a lot of it.

Shortly after the incident that gave me the PTSD, it took one pointed question from my therapist for me to literally say, “Yes, I’ve also read the PTSD diagnostic criteria.” I knew my stuff, and even while still standing there with my father’s ten day old corpse, I was very aware that it was the kind of thing that tends to leave you with long term effects. The question from my therapist came only a few weeks later, not long enough for a formal diagnosis—something else I knew from research—but I could see the road I was on.

The new symptoms felt strangely familiar. Hypervigilance was something I’d read about, wrote about, for so many years, that it didn’t feel new, especially as someone with pre existing sensory issues and anxiety. It was so tightly woven into characters’ lives that finding it in my own felt kind of like a fan of any work stepping into that world. Of course you’ve never gone to Hogwarts, Harry Potter fans, but you’d kind of know your way around, wouldn’t you? 

I did find it interesting that I developed the hypervigilance, since it would’ve done me no good in the traumatic incident. Nightmares, too, beyond what I’d developed as an anxious child with an overactive imagination, felt strangely… familiar. I’d spent enough restless nights writing about characters waking up in a cold sweat that waking up like that myself before turning to the notebook or laptop didn’t feel so new. Flashbacks, too.

But what really made trauma feel so familiar? Was it really just so many years of inflicting it on characters? Was it pre existing anxiety? 

But here was another complication, a major wrench to throw in any comorbid disorder group: the schizophrenia.

Over time, my flashbacks manifested a significant portion of the time as true hallucination, something that I was used to from schizophrenia. Now, here’s an almost funny thing: in fiction, one of the most critiqued techniques of portraying PTSD flashbacks and nightmares is in the vivid, clear, straightforward nature. Real PTSD can give you a flashback to one sense but not another, to something somehow connected to the trauma but not directly, show you a hazy overlay, or be an almost purely emotional rather than sensory response. Nightmares often mix up elements of trauma with random elements from your life, not just playing the trauma again and again. 

But that’s hard to portray in fiction, especially in visual media like movies, and especially when flashbacks and dreams are also used as narrative devices. Hence, you get those straightforward, easy to comprehend for the audience cutaway scenes.

But for me, schizophrenia mixing with PTSD did make daytime flashbacks manifest as clear cut hallucinations. There wasn’t just the sensory confusion or disconnected emotional responses; I’d be looking at/hallucinating my father’s corpse in the corner of the room, or in the bed—which became one of my biggest triggers—or perpetually behind me. The laughably oversimplified PTSD portrayal was, oddly, spot on for me much of the time. 

Now, I have to remember that in all cases, my PTSD is not my characters’ PTSD, and none of them have comorbid schizophrenia. But one reason trauma felt so familiar to me was that it was already a part of the characters already living in my head. And all of the research involved in making that feel real. Another, that the schizophrenia induced hallucinations and anxiety I’d already lived with went a lot like the way PTSD flashbacks eventually manifested for me. Perhaps the biggest complicating factor: my much thinner line between reality and fiction than most peoples’—if my characters experienced anything, it was much more like I was experiencing it than even most creative types would agree with—so maybe, in a way, I’d had a bit of self created trauma and PTSD all along. Or maybe it was just tortured artist syndrome. 

But again, I risk the horrifically oversimplified portrayal of PTSD trope in fiction even if I’m true to some of my experiences, because of what schizophrenia makes it like, an interesting conundrum, and without characters with comorbid schizophrenia, it remains inaccurate. 

After my traumatic incident, I wrote a lot of dark material for an already dark project, mostly in the middle phase of largely sleepless nights. I was especially unpacking a pre existing character’s trauma from both previous and new drafts, especially in the immediate fallout, a time period I’d seemed to drift away from before, with many characters’ primary traumas existing far into backstory, aggravated by a dark world. Was it my own recent trauma that drew me into that time period, or was it simply time for it anyway? Hard to tell. Likely at least a bit of both. 

Though, wallowing in horror, gore, and otherwise macabre genres is a common trauma trope in itself, something like self inflicted exposure therapy—though I stayed away from my exact triggers, decomposition and the like. But I’d almost always had that draw to dark fiction, pre trauma—again, why? My pre trauma mental health symptoms—schizophrenia, anxiety—did seem to draw me more deeply into those, much like PTSD symptoms do for many others. It’s almost like my mental health experience was always so close to PTSD, but with no real cause, a crucial part of it, before it developed. Some comorbidities are already more likely than others, too; maybe I was always all but doomed to develop PTSD at the slightest provocation, and I got a bit more than the slightest.

Things I think about. Plenty to unpack for myself and characters both. 

This Is What Schizophrenia Feels Like

This is what schizophrenia feels like,

It’s hearing a crowded coffee shop in a silent office, and hearing nothing in a crowded coffee shop 

It’s a fake flash of light here, a fake bit of white noise there

It’s an object looking upside down, wider, shorter, three inches to the left, and back again, and back again 

It’s turning down the music and realizing half the volume’s in my head

It’s a phone, doorbell, alarm that rings for three days

It’s hearing my name whispered from the next bathroom stall

It’s something always in my peripheral vision that’s never really there  

It’s the “dog” that never needs feeding but can trip me on the stairs

It’s the “corpse” that I can’t shake in the empty spot in the bed 

It’s the “demons” that dance in impossible lines 

It’s real shadows taking shapes and shadows coming from no real object 

It’s putting on noise cancelling headphones that can’t cancel what’s in my head; oh

This is what schizophrenia feels like,

It’s real and it’s not real. 

This is what schizophrenia feels like, 

It’s the, “Even schizophrenia doesn’t make you unworthy of love,” like I thought it was the exception

It’s the caricature of a shouting schizophrenic racist like that’s all we are

It’s the, “Cat? I don’t see a cat,” even when you know it breaks my mind

It’s the romantic tragedy trope for no reason because it sounds extreme

It’s the, “I’m not qualified to help you,” from someone with a wall of degrees and a fake smile

It’s the no, I wouldn’t cure myself if I could

It’s the no, I don’t know if I’m hallucinating—

It’s the no, I can’t explain—

It’s the, “Did you take your meds today?” 

It’s the playing pretend at first, then 

It’s the uncomfortable expression; when you started talking mental health, you expected depression or anxiety; why?  

This is what schizophrenia feels like, 

It’s too much and it’s not enough. 

This is what schizophrenia feels like, 

It’s the pharmacy isn’t real and neither are you

It’s I have to protect my telepathic notebook

It’s I have to flush the meds flush the meds FLUSH THE MEDS—

It’s you want to hurt me and it’s, Let go of me—!

It’s I have to run away

It’s but only the house is safe

It’s I don’t even know anymore 

This is what schizophrenia feels like,

It’s true and it’s not true. 

This is what schizophrenia feels like, 

It’s staring at the wall seeing nothing

It’s staring at the wall seeing everything you can’t

It’s sinking into a daydream the way I’d sink to the bottom of the ocean

It’s the deeper I sink, the harder it is to surface

It’s but sometimes it’s beautiful down here

It’s characters three steps ahead of my mind

It’s the whole room doesn’t go away for you? 

It’s not noticing fingers snapped in front of my face

It’s limbs going limp 

It’s you’re supposed to be able to control waking dreams?

It’s how do I get back? 

It’s no I don’t control who my characters are 

This is what schizophrenia feels like,

It’s story and it’s fact.  

This is what schizophrenia feels like,

It’s a poem I’ll never get right. 

I Went Off My Medication and Hallucinated Evanescence

What it says on the tin.

And it was, honestly, probably the most emo thing to ever happen to me.

Let me back up and elaborate.

I didn’t impulsively and abruptly go off the med (though the occasional flush all of it! urge is strong). What happened was this:

When I started Seroquel about a year ago (the only psychiatric med I’ve been on in years), I was prescribed 100mg, one pill at night. It worked like a charm for several months, but then I started getting the token grogginess in the mornings. At the advice of my psychiatrist, I went down to 75mg. Except that they don’t make Seroquel in 75mg tablets, so I actually took three 25mg pills at night. Okay, so that was fine. Grogginess gone, but sleep was still good, along with mood, psychosis, etc. I was told that if need be, I could go back up to 100mg and give her a call for a new prescription. 

During a week about two months ago where I was having trouble sleeping due to other factors, I went back up to 100mg, taking four of the 25mg pills. I kind of meant to go back down after that week or so, but the 100mg was working well and the grogginess hadn’t returned, so I stayed, and was given a new prescription to go back to 100mg.

Now, I was back to the one, 100mg pill, again free to go down if it was too much. This pill still seemed to hit me differently than the four 25mg ones, and I felt the grogginess return. I wasn’t sure if this was again other factors or the meds, so I tried cutting the 100mg (half, then cutting one of those halves in half again) and taking 75mg. (Bear with me through the numbers for a minute.) 

I did eventually attribute the extra grogginess to probably external factors, but I also didn’t feel any worse for taking the 75mg, and my psychiatrist had emphasized again and again taking the lowest effective dose, especially since you can develop a tolerance to Seroquel over time. So I took the 75mg for a few weeks. I felt stressed a lot, but attributed it to having a lot to do. I was still writing like crazy, and mostly keeping up.

Then I got curious, and went down to just taking the half (50mg). I again noticed no difference. In hindsight, my mood, focus, and energy had really begun to drop, but nothing crazy. There was no difference in my sleep. I fell asleep promptly enough, slept relatively soundly, dreamt (for better or worse), and woke with as much ease as ever. Now, I’d never been on only 50mg before and I didn’t, at the time, notice a difference. 

Thinking that odd, I kept going and went down to 25mg (a quarter of the pill, being all out of the former prescription). I did that for a few days and felt terrible but didn’t attribute it to the meds. I was depressed and irritable as hell, but had attributed this to another problem. (I did have… something during that time frame I’m still not sure of. Stomach flu? My wife got a version too, whatever it was. That definitely wasn’t the med’s fault, but it was a separate set of symptoms.) I again didn’t notice anything different in my sleep, the thing I felt so sure I was going to notice a change in if the meds were doing anything useful. When I went on the Seroquel at first, it was the sleep I noticed instantly. I still had some energy, and although I thought it was too hot for my usual walks most of the time, I still enjoyed long swings on the swingset in the yard, this week to the soundtrack of a newly discovered old song by Evanescence I was really enjoying. 

Finally, I said, To hell with it, and one night skipped the med altogether. And I lay there. And lay there. Sleep wasn’t coming. Even sleepiness wasn’t coming. I was irritable, depressed, mildly panicked, and incredibly restless. My head was pounding to the beat of that Evanescence song and it was stuck in my head playing on full blast, drowning out other thoughts. Sensory overload coming from inside my brain. But it felt mostly just like having a song really stuck in my head, which for me I know always works a little more like hallucination than it does for other people. (You ever tried describing having a song stuck in your head to a hypothetical someone who has no idea what that means? Now there’s a thought exercise about sanity.) 

But I realized something was up, caved, and took the full 100mg, the last dose that I knew I had felt good on, and had only started going down from because of grogginess I now attributed to something else. Within fifteen minutes or so, I was calm, half asleep, and the volume of the Evanescence song had gone from 99 to 5. It was like someone just whoop turned the volume dial down in my brain. Still there, all the same qualities, but at about five percent of the volume. I could hear other thoughts. 

Oh. So that explained a lot.

So, I’m back at 100mg. I’m open to going back down to 75mg depending on if the grogginess seems to return, and if my mood changes if I do go back to 75mg. But for now, back at square one. 

I think it was a worthwhile experiment even if it didn’t go super well—and even if it took me a while to realize it hadn’t gone super well. No tragic consequences; it wasn’t really done recklessly, and I do believe in finding the lowest effective dose and not mindlessly settling on the current med regimen, even if it’s just proving where you’re already at; it also gave me some more confidence in the meds do important things for when I get those med flushing urges. Today, I’m thinking, God bless Seroquel, but I’m sure that urge will come back at some point.

Besides, I went off my medication and hallucinated Evanescence should really earn me my official Emo Kid Card. Rock on. 

Tracking Contrivance vs. My Mental Health at the Time

I’ve been working on my fiction novel, Contrivance, since 2011. Numerous drafts, huge changes, shifts of universes, new plots, evolving characters, and total do overs.

My goal here is this: trace those changes along with my mental health state at the time.

(Note: this post was updated to go through the current month, after the original post.)

December 2011

Contrivance is born of a massive Hunger Games fan fiction project. I’m now creating the characters who will ultimately become the main characters of Contrivance, though, at the time, they’re simply original characters to play a background role in the fan fiction, the Gamemakers, who create the titular Death Game, the Hunger Games.

It’s the holiday season, and I’m running around town, shopping with my dad. I lean a back to school sale composition notebook on the back of our shopping cart and start on basic character profiles. Pull names from a list I’ve kept of ideas. Write interactions to test how these characters go together by the fire and Christmas tree at home. Lavender, my eventual main character, currently the Head Gamemaker, already technically exists, but not in any recognizable form. 

It’s Christmas break of eighth grade. Days before school let out, I had my first panic attack while working on another part this series in free time during Algebra I. Rushed to the nurse’s office and then the ER, I went home early that day, took a day or two off, and went back for the last day before break.

These characters catch my interest quickly. By New Year’s, I’m on chapter three of the companion story to the series I’m writing that introduces them, distracted from all of life’s new questions.

July 2012

I’ve begun therapy and medication for anxiety. I’m working on a different companion story to that big series. This one introduces Justice as a character (which we won’t come back to for a while).

I write an original short story, “Contrivance”, using “the Gamemakers”, for a summer program for gifted kids, where I basically take a semester of Creative Writing in three weeks at the local university. 

The universe concept is that in a world where everyone is assigned a job by lottery, promising young people get a chance at the best jobs by proving themselves in a VR simulation called Contrivance, which also matches them to the field where they’ll do best, personalized testing based on analysis of their dreams, which can be recorded. The short story basically tracks one run of Contrivance the game, taking a few weeks.

A few names and appearances shift with the universe change, suited to something that’s not the Hunger Games’ stylized Capitol. Some don’t stick, but the ones I feel the need to change here eventually settle out to something new, among other minor changes. I have to submit two short stories for review over the course of the class. The instructor tells me that the other is good, but “Contrivance” is clearly where my heart is. And maybe it’s more than a short story. 

April 2013

In January, I had my first psychotic episode, terrifying demonic hallucinations. The episodes keep coming, hallucinations paired with paranoid delusion or catatonia, tears or panic. 

I begin writing a novel draft of Contrivance for Camp NaNoWriMo, a challenge to write 50,000 words of fiction in one month. I end up writing over 77,000 words that month. It goes from Lavender’s job interview for Lead Deviser (the “Head Gamemaker” equivalent) to the completion of the first time she leads Contrivance, about a year later.

I’m permanently stressed and sleep deprived by the magnet school I’m at. In late March, after receiving a poor grade from a spiteful instructor for a special project that halts all normal classes, I panic, knowing it’ll be incorporated into my English grade. I ask my English teacher if I can submit a novel I’m writing next month for extra credit. He’s a little baffled, but says yes.

In this draft, Lavender inherits my psychosis. It fades in and out in a few more drafts, but mostly doesn’t last. 

April 2014

I do NaNo two more times in the middle. In July, I write over 93,000 words, a sequel to Contrivance titled Trial, named after a feature of the in universe game. In this one, the Contrivance test takers are kidnapped by rebels, though Lavender teams up with the usually evil Contrivance Director (who oversees the more administrative and financial side of Contrivance) to rescue them. To discourage revolution, Contrivance is toned down a bit. 

I’ve started frequently pairing Lavender and Francisco, one of the Devisers, off at the end, though it’s always strangely sudden, and sometimes even in the epilogue, they split up again. It’s not quite working.

By April 2014, I’m ready for another draft of Contrivance itself.

A lot of the characters are taking very recognizable shape by now. Not so much a contradiction of what they were before as a solidification. Lavender and Malka still have a long way to go, but their relationship is starting to take on the more formal mentor/apprentice turn. Malka is the former Lead Deviser (the leader of the Devisers, who create Contrivance) and has a lot of advice for her replacement as she steps down, as always. In this draft, there’s a formal office mentoring program for new employees; Kaye, hired at the same time as Lavender, is involved as well, though from even the short story, Lavender seems to unofficially look out for her. Here, Lavender and Malka (and Kaye) don’t meet before Lavender’s job interview, though it’s clear Malka’s had her eye on Lavender for the role for quite some time as she went through training. (The formal office mentoring program is interesting and sticks around for years, but doesn’t make the final cut.)

Meanwhile, my psychosis is getting out of hand, and I leave school, too agoraphobic to leave the house.

July 2014

My parents have gotten a divorce. I’m planning to homeschool in the fall. To overcome my agoraphobia, I’ve started going to the weekly NaNoWriMo meetups.

In this July’s NaNoWriMo, Lavender’s hostile relationship with the Contrivance Director (who in previous drafts frequently would do things like use torture just to send a message) comes to a head when the Contrivance Director tortures and plans to kill Kaye, nearby but outside of Contrivance Headquarters, which at this time was an isolated complex in the middle of nowhere. (That setting lasted for quite some time, later shifting to New York for a notable minute, before settling in Washington, DC.)

Lavender and the other Devisers thwart this plan, ending in Lavender killing the Contrivance Director. Realizing that the people inside the complex are not on their side, they flee into the wilderness, hoping to make it to the actual Contrivance Testing Complex to get a hold of the right government officials.

Once they do, Lavender is on trial for voluntary manslaughter, though sentencing gets reduced to probation and fines. Contrivance’s staffing gets an overhaul to prevent people like the Contrivance Director from getting in, and the Deviers safely return to Contrivance Headquarters, though Lavender is suspicious of the new, innocent Contrivance Director and doesn’t seem to fully recover from all the events, developing severe PTSD. 

This turns into a nervous breakdown and she ends up in a psych ward for part of the novel later. Malka is effectively the interim Lead Deviser again, as Lavender’s supposed to focus on recovery and not her job (something she struggles with, though she starts to grasp the importance of it).

There were a lot of issues with this draft (see the gaping plot holes), but it got into some interesting themes. We really start to question the Devisers’ morality outside of even Contrivance, see mixed factions within the government, and explore a lot more mental health themes. 

November 2014

I’m still trying to get the above kind of outline to work, but failing. Most of the plot is eventually scrapped, along with most things to do with the Contrivance Director. I don’t finish NaNo. Mostly non verbal for nearly a month due to a mix of dissociation, disorganized thoughts, and distracting hallucinations, I myself almost end up in a psychiatric ward, though in the end I simply commit to sorting out my meds.

February 2015

Writing continues, heavily focused on Lavender and Kaye’s friendship. I’m starting to realize that I care more about the Devisers’ relationships than about any world or plot issues, but I’m not sure what to do about it.

I develop a self-harm problem. Interestingly, self harm and suicidal ideation are the key mental health issues that plague Kaye. In many early drafts, she commits suicide near the end of the novel/series. (Rissa, another Deviser, frequently does, too. This was in drafts where Malka usually died first of fairly natural causes, resulting in emotional chaos for the Devisers. Rapidly killing off half of the main characters for non plot related reasons was becoming an issue, though.) 

September 2015

I’ve started community college classes, but it’s not going well. I attempt suicide, an ultimate low point, though it actually turns out to be a key turning point. I swear off self harm and with only a a few relapses in the next several years, quit entirely. I’m also around this time diagnosed with autism, schizophrenia, and anxiety. I’m working on new Contrivance ideas. 

November 2015

I finish NaNo again despite a hectic month of family medical issues, though my own are improving, working on Contrivance, but exploring new ideas and writing in random orders, not going for a full draft. I’ve scrapped the job lottery/ability testing idea for worldbuilding issues, and go for general unethical experimentation instead.

Somewhere in here, I know Malka’s aged moved up a little, about sixty to about seventy. 

In the past year or so, Malka and Lavender’s relationship has become increasingly hostile in every draft. Malka seems to no longer be there with just perhaps unnecessarily high standards, but seems to exist to criticize and cause problems. Rather than trying to follow Malka’s advice out of respect for her abilities, Lavender seems to be just trying to tread water. Malka especially interferes in Lavender’s connection with Kaye. 

By the end of the month, I’ve done my first official experimentation with the idea that there’s more history between them than meeting at Lavender’s job interview, starting to really roll with the childhood apprentice idea I formerly only entertained as an alternate history.

January 2016

Still in a bit of a low spot, I try a collaboration in which the Devisers go on a quest for the government by travelling between universes to meet with my co-creator’s characters, powerful magician sorts working for a military in the other world. The Devisers will bring them modern war technology and strategy in exchange for magical training. It’s short lived, but kind of comes back later… 

I’ve started experimenting with the idea that Kaye is autistic, and she occasionally comes into Lavender’s new backstory with Malka, though I can’t seem to make her stay there. I think this is around the time Malka either developed a military backstory or it really became relevant. 

The next month or so, I relapse once on the self harm. 

March 2016

I’m improving mentally, but still stuck on what the plot for Contrivance actually is, so I take a break from it as a serious original fiction project and throw the characters back into something like fan fiction. I’m wrapping up the fan fiction universe the “Gamemakers”/”Devisers” still do exist in, in their original form, so I try something new. 

It’s still kind of original fiction. The Devisers, doing experiments for the United States government, conduct their most questionable one yet, based on a now old dystopian novel: The Hunger Games. Could such a thing really happen? What were the effects on society? How did people just let it be? 

I called it Contrivance Chronicles. There were actually several more playful, lighter touches here. Justice joins this cast for the first time, though she’s not a Deviser. In the fan fiction universe, due to character deaths, two new Gamemakers had joined the panel, Zeely and Laya (who’s the sister of one of the Devisers, Thespian, sometimes seen previously as an intern). They both appear in Contrivance Chronicles as well, though neither lasted long as Devisers in most original drafts of Contrivance. Laya, prominent as Thespian’s sister in some drafts, is cut not long before the final version. Another new Deviser named Jorah sometimes appears briefly, though in about two scenes ever written. A very changed version of them later appears in my non Contrivance short story, “What Happened Last Storm”.

Justice is a secret revolutionary against Contrivance in this draft, though she’s conflicted as she volunteers at a community theater, working on putting on the musical Annie, staring all actual talented orphans. Thespian is her co director, a Deviser who volunteers on his off time. They bond unexpectedly, and Justice even subtly warns him of an upcoming attack, telling him to keep the Devisers away from that location the day of. Contrivance Headquarters is now set in NYC. Justice keeps some of her revolutionary friends from her original universe, but most of them are starting to fade in importance. I want her more entwined with the Devisers, but I’m not sure how.

Meanwhile, Malka pressures Lavender to adopt/apprentice one of the children from the show. Lavender likes the child, but doesn’t feel ready to be something like a parent. (We’ll come back to Lavender taking on an apprentice—with the tables turning a bit.)

The project didn’t get terribly far. There was a lot of silliness here, though some important things start to crop up. 

January 2017

I’m still in a rut on, “What is the plot of Contrivance?” For the first time in a long time, I start some new original fiction projects that actually get somewhere that aren’t Contrivance, though Contrivance is still what mostly seems to play in my thoughts. I believe Malka’s name started to change (to Malka) around here or a bit later.

My mental health is mostly improving, and I’m making plans to go to college. 

October 2017

I’ve attempted to go to college in Boston, and things aren’t going so well, and I’m in a psych ward.  

I pretty much have my notebook for company, and I start trying out a new idea, combining Contrivance with one of the projects I started around January, which ends up looking a lot like the collaboration: traveling across universes. Even Justice finds a place as someone who had left the dark magical group and was now forced to return as part of the deal with the modern US government. I never actually write much of this, but the ideas were interesting in my head.

I leave Boston in early November and go home. Eight days later, I meet the love of my life.

April 2018

I moved in with my girlfriend in January, and I’ve even gone off meds. Everything is looking up, except for a set of mysterious physical health issues no one can diagnose. I barely write; I’m exploring a few new projects, but almost nothing goes on paper. I’m thinking I’ll stop the weird experiments and try to get back to the core of what Contrivance is. 

August 2018

Ah. So the house I moved into is full of toxic black mold, and I have a pre-existing respiratory condition. This gets remediated, though even more time passes as I fully recover. I stop going to NaNoWriMo events locally, though I still want to write for the challenge, despite a slow few months. I’m eager to start sorting ideas out again. 

July 2019

Writing is still slow as I deal with lingering health issues. I got surgery in April for the respiratory issues. I recommend my dad (who I got the nose from) to my ENT. My ENT looks at my dad’s general medical file and says, “I’m surprised you’re not seeing ghosts.” 

My father abruptly dies at home a few weeks later. 

But all I know is he’s not answering his phone, and now my mom says mail is piling up in front of his obviously unopened front door. Grandma says he didn’t put the trash bins down on trash pickup day. Something’s not right.

I use my spare key to get into his house when he doesn’t answer my knocks.

Yeah, something’s not right: he’s been dead for ten days.

August 2019

Coming back from a trip, a long car ride, I start trying to figure out some details for Contrivance again. I’ve figured out how to get Justice involved, as a former Deviser who left for the revolution and returned, much as she’d left the magicians in that one draft. Her primary Deviser relationship is not her friendship with Thespian (as it was in Contrivance Chronicles; Thespian appears much closer to another Deviser, Trace, here). Instead, Justice is focused on her romantic relationships with Rissa and Ritter (Rissa’s husband), a possibility I’ve imagined for a long time. Her age shifts slightly as needed. The revolution is becoming an important theme again. 

I start to sort out Lavender and Francisco’s relationship. While he pines, she just doesn’t feel that way about anyone, but she’s aware of his feelings, lending a strange edge to their otherwise close friendship. At least I’m not just throwing them at each other in the epilogue. 

I’ve spent the last several months handling my father’s estate amongst the new trauma. I’m busy, but I’m creating again. 

November 2019

I finally have tenants move into Dad’s house as a rental on the first of this month. Things are slowing down. I can work on other things now.

It’s NaNo again, and I haven’t finished it in four years at this point. But it’s not like I sleep at night anymore, so I may as well write.

The first few days are slow. I go for miscellaneous Contrivance pieces, which is what I did the last time I finished. Some interesting ideas are coming out, but nothing of real substance. 

My girlfriend, her friend/coworker, and I go to California on a business trip. In the car on the way there, I blare Evanescence through my headphones, stare out the window, and will myself to come up with something. 

I’m exploring Malka and Lavender’s relationship a lot again. It’s… less hostile. It’s still deeply screwed up for sure, but there’s a norm of a superficial layer of civility at least, and there’s obviously a lot of love somewhere in the messy mix.

So I try writing down ideas for things that could’ve happened in backstory.

One concept jumps out at me.

I do little but sit in the room and write the whole trip. My hands barely leave the keyboard. I don’t sleep, I eat only something in the morning and then whatever I made for dinner for my girlfriend and her friend, and I’m distracted whenever I’m not writing. 

This was when the practice interrogation was born.

It’s a gripping idea. An especially dark take on the world the Devisers live in, the very real threat of a revolution. People out there want the Devisers hurt or dead. That’s pretty much always been true, but more of an emotional factor than a logistic threat.

But in this draft, I say, So what do they do about it?

Of course, they have government security, all of those good things. But backstory for Lavender, at least, starts to include combat training and practicalities. I kind of skim over these things while I’m gripped by the interrogation idea, but I come back to the full depths of those later.

So I add into backstory that Malka prepared Lavender for a capture scenario. Gave her some data to keep a secret and spent sixty hours trying to get it out of her. In various eventual drafts, there was a little bit more preparation before this, or the idea that this was supposed to be more of the start, not the end, of this curriculum. In the end, it’s a bit of both.

As I finish that up, along with a lot of the fallout, the next thing to explore is, of course, the payoff of this.

So I start a new document called “The Devisers Are Captured”. Later, this becomes the opening scene of Contrivance. The Devisers are thrown into a hostage situation, this time in Contrivance Headquarters as set in Washington, DC. Offered the sadistic choice of picking who will get interrogated for information first, Lavender steps up. The others refuse to quietly agree, many claiming they should go, and Lavender says they should vote. Everyone votes for themselves, except for Malka, who votes for Lavender. 

Lavender quickly gets separated from the group while the Devisers round on Malka for answers. Malka reveals the practice. A book of emotional chaos ensues.

December 2019

Needing worldbuilding that adds up, I change what Contrivance is again, this time opting to go back to the Death Game genre origins I never truly escaped, an annual televised simulation of a social collapse scenario, participant households chosen at random, and one surviving, while keeping it original fiction. I have an awful cold a lot of the month, and so lie around and write a lot. I sleep from about 10PM to 12AM, and 4AM to 10AM. In the middle, after the nightmares, I write.

February 2020

Just starting to see the PTSD calm down for a bit, I keep rolling with my current Contrivance train of ideas. Eventually, I run into a wild take on the fallout of their capture, which is, What if they did the practice again? 

But it’s different this time. Lavender, paranoid that, while their capture and rescue did not result in any leaked information, it would be easy to get information out of her in the future if only their captors tried to play the Devisers against each other, hurting someone she loved and asking her the questions, asks Malka for a new curriculum: resisting the other Devisers being in pain, though without letting any of them know this is happening. They’re still furious over finding out about the original practice, and none of them would agree to help. Besides, Lavender doesn’t want to expose them to it. 

Lavender definitely is more than just a victim here, a direction she’s been heading in for a while, much more of an active participant and instigator in the questionable activities her and Malka engage in. 

All kinds of subplots come out of this, and of course, the question: how does this one pay off? 

May 2020

There’s a pandemic. The world seems to be ending. Talk about my novel now being timely. My grandmother passes shortly after the beginning of quarantine. I get engaged.

Meanwhile, I start posting Contrivance pieces on a website of my own, snippets that are out of order, presented as a bit of a puzzle. A lot of it doesn’t go neatly together yet.

July 2020

My mental health declines. The PTSD at the one year anniversary. Grandma’s death. The psychosis. I go back on meds, though I stop attending therapy (now on Zoom) a few months later as I improve. I’m still working on multiple projects and producing a lot of words, mostly focused on the I’ll Give You series as a break.

December 2020

My wife and I got married last month. I’m doing well, really. I published my first book, a non Contrivance “side project” that got out of hand and is now a popular series of its own. I’ve taken down the Contrivance website and start to post Contrivance online chapter by chapter as I did the other project, now officially starting for basically the first time since the fan fiction universe somewhere other than Lavender’s job interview: with “The Devisers Are Captured”. This ages Lavender up a little. I try to make it mostly linear, sensical for new readers, and kill my darlings a bit. Here we go. 

I also post the first companion, “How Justice and Rissa Fell in Love Again”, because there’s too much content for it not to.

February 2021

I publish my second book, still not Contrivance. That “side project” really got out of hand. I’ve started teaching webinars, I’ve started going to butler school. There’s a lot going on.

Still, I love the Devisers. Focusing on them more again feels like coming home to old friends. Friends you’ve known too well, too long to think they’re perfect, but that feel easy, like home anyway.

May 2021

I take a little staycation, a few day writing retreat alone at a nearby hotel, using rewards points that we got to keep through the pandemic. It doesn’t go well. I don’t take care of myself, lost in my words, around Chapter 9 of Contrivance, and my mental state spirals, and I self harm for the first time in many years, the first since Boston. My wife takes me home early.

July 2021

I’m now running a local alternative sexuality group, and I publish Service Slave Secrets (Volume One), the first years of my blog on the subject, to a nice reception. The I’ll Give You series flows.

I try going off my meds briefly, gradually cutting down with the thought that I’ll stop when it starts to affect my sleep, as that’s the easiest way to measure the minimum dosage. However, my sleep doesn’t really suffer, but I abruptly realize, five minutes overdue for the first dose I’ve totally skipped, that I’ve been absolutely miserable, and can’t hear my own thoughts over the music hallucinations I mistook for a song stuck in my head, among others. I go back to the full dosage that night. 

We go on our first vacation since before the pandemic, and I get road trip time to think.

There are still some details about the ending of Contrivance this time around that I’m figuring out. I need it to be… relevant. But it’s coming together.

Soon, I post another companion focusing on the other Devisers (not Lavender or Malka), “Francisco’s Guide to Insomnia.”

November 2021

NaNoWriMo isn’t going so well, but I publish Book Two of the main I’ll Give You trilogy and post a Contrivance backstory companion, “We Are All That We Have Lost”.

Several months into the “health kick” that’s taken an especially dark spiral recently—purging and fasting and overexercising—I accept that I have an eating disorder—all of the symptoms of anorexia, not quite underweight—and start the cycle of on again off again commitment to recovery. I don’t need to weight restore, but this cycle has got to stop. I start to talk about it with the people close to me.

March 2022

Oh my God. It’s done.

Just as suddenly as it sounds, I publish Contrivance, in the same week as The Second IGY Companion.

It’s surreal. Finishing any of my books was surreal, but this one especially.

It’s certainly an interesting month. I’m still bouncing back and forth on the eating habits, now with my wife’s help supervising three meals a day for a while, starting to sort out my disordered thoughts around food, focusing on the fact that skinny seems to represent productive for me, and that I’m actually more productive—like publishing two books in a week, productive—if I just suck it up and eat. I’m also finally learning how to drive.

I keep my heart open to more of Contrivance, but for now, I think I might actually be done.

August 2022

I can’t help myself. There’s a sequel.

But I love what’s coming in Book Two. I love the addition to the main cast who actually works, I love that this isn’t a plotline I’ve done to death before, I love that it feels true to the sentiment of Contrivance.

All right. One more book.

In the last few months, I’ve also started donating plasma, started a Little Free Library, have been working on my newest blog, A Productive Hannah, and published Service Slave Secrets: Volume Two.

August is a hard month for me, though. I’d like to blame it on hormonal, non psychiatric med changes, but I’m not sure. Right on the heels of some major anniversaries involving my father’s birth and death, symptoms, especially the eating issues, flare, and burnout threatens.

I spend a week on vacation in Boston, and vow to take September off from events.

October 2022

I post another companion story as well, a Justice centric piece that’s been in my head for a long time.

Book Two is flowing. A lot of it in my head, some of it on paper, and a second chapter actually gets posted.

I’m back to events, but we’ve gotten into camping, a welcome reprieve from most of the world. I’m trying to find balance, and overall, my events and writings are going really well. I’m trying to clear my plate a little, to publish The Schizophrenia Diaries, to be able to focus on fiction more.

We’ll see what the future holds.

My Schizophrenia Story

When I got my first definitive sign I had a mental illness, I was writing.

I was near the cusp of fourteen and in Algebra I. December 2011. Given some time to do homework or such at the end of class, I, as I often did, took to writing.

I was writing a character death scene in which the character in question drowns. In the ultimate irony, the character in question was schizophrenic—but we won’t get there for a while.

The important thing at the time was that I had a near lifelong fear of water. Being a desert dweller, it didn’t come up much, but the ocean, especially, or even lakes—drove me into a panic. I had recurring nightmares about tsunamis or storm surges, drowning. (This later turned out to be likely due to my respiratory issues flaring during sleep, pre surgery for them, causing the daytime phobia.) In any case, this scene was close to home.

At some point while writing about this character running out of oxygen, I snapped out of my zone and realized that I actually couldn’t breathe.

Things went quickly from there. I was rushed to the nurse’s office and then to the ER, hyperventilating on the edge of blacking out, vision going dark, limbs too numb to stand, clutching at the chest pain.

I was diagnosed with my first panic attack.

And after the first, they kept coming. Over the summer, I started therapy and medication.

About a year later, I was taking a Biology exam when I started being taunted by red, blobbish, demonic figures drowning images of those I loved—down to my cat—in blood, singsonging gibberish insults.

I began having such episodes as frequently as the “old” panic attacks. I was often delusional—paranoid, physically lashing out at anyone trying to comfort or move me—or catatonic—my arm dropping limply if you lifted it—during.

By spring semester of tenth grade, 2014, it was far too much—especially at this high pressure magnet school—and I left school for a year of “homeschooling” before I was able to get my high school equivalency a year early. I was too agoraphobic to leave the house for a while. It was a critical time for me in many ways. My parents got a divorce. I made my first adult friends—all writers—and got into my first serious relationship. I attempted community college for creative writing and made a few bucks writing clickbait. I volunteered and got involved with NaNoWriMo. Mostly, I wrote. 

Parts of what at first seemed like—maybe, at the time, were—isolated episodes, became patterns, habits, and day to day, on a much lower level. Some things, in hindsight, had been with me my whole life. I sought another diagnosis by now, besides the anxiety and schizophrenia—autism. I spent most of a month nearly nonverbal, and was almost hospitalized.  

When things got worse, my mood plummeted. For most of 2015, I fell into patterns of self harm and suicidal ideation, or at least the urge to run far away, or sleep for a very long time. I attempted suicide that September, and it was a turning point. I swore off self destructive urges, save a few once off relapses I could count on one hand years apart, and threw myself into change.

In the fall of 2017, I left to attend a private four year liberal arts college in Cambridge, MA. I loved the school. I loved the town; I loved the people there; I loved what I was learning. That wasn’t the problem.

Being too far from home, maybe, on my own, or meds that needed to be adjusted—whatever it was, I landed in a psych ward—finally, after a lot of near misses, hospitalized for the first time, less than two months into the school year.

I tried to stick it out for a while, going back and forth on my decision, but within a few weeks, landed safely home in Vegas, at a loss for what the future looked like.

Eight days later, I met the love of my life. That changed everything. 

Now, the timing, of course, looked horrible. But three years later to the day, 2020, we were married in a ceremony in the beautiful home we own, surrounded by people we love, as people pursuing our passions. I was about to self publish my first book, which would be quickly followed by more, and was soon to start teaching alternative sexuality classes via webinar (within months, I’d also be running a related local group). I was going to start taking a household management course online, and was learning how to be an effective landlord. And, I was a happy housewife who got the girl, the two cats, and the house on the end of the cul de sac.

In the ceremony, our officiant mentioned that we had packed thirty years of marriage into three years of courtship. I almost died of black mold poisoning, all but bedridden for months. I had life changing surgery. Two deaths in my family, and estate handling. We bought a house and moved. A pandemic, quarantine. I went off and then back on meds, though I eventually left therapy. We thought, briefly, my wife might lose her job. There were things with her family. Medical emergencies or surgeries for the cats. Mental and physical health issues. For all the health issues I brought in, I also now had PTSD from one of those family deaths in Summer 2019.

Is everything perfect now? Is everything solved? No, but I’m writing on a laptop in front of me with a warm cat in my lap and my beautiful wife three feet away. The sun is shining; the neighbors’ son plays with his dog outside. We saw friends and family yesterday and we will today. I have things to do I can’t wait to get to, and a vacation coming up.

And life is pretty good.

Turning Hallucinations into Characters: Are They Any More Real?

She’s here again, so I’m not having as okay of a day as I thought.

The backyard is mostly dark, but she’s there in the shadows of the bushes, darting or teleporting around. Compared to what I usually see in dark shadows when my mind turns on me? I’ll take the puppy.

“Hi, Farrah,” I deadpan from the swingset in the AA tone. It has been a long day, I guess, and I no longer care if the neighbors can hear me. Still, I take out one headphone, still blaring Hamilton, like it matters.

Farrah smiles at me in this way that real dogs don’t really smile, wags her tail and bounds over, under where I swing. Back through. Again and again. Like she’s trying to get me to kick her at full speed. She’s worse than the little kids at the park. I sigh and, properly distracted, stop swinging.

My darling hallucination races in circles around my feet. A lot of energy for the evening. What? I ask her mentally. You’re not a herding dog. But she wants me inside, much the way the real cats start herding me to the bedroom around this time.

But it doesn’t seem to be sleep she wants. I’m determined to sit in the living room and write down an idea I had on the swing before I do anything else. When I do, Farrah settles down. I can feel this weird sense of relief on her, like I feel it as my own when I get the idea safely on paper before my mind gives up completely.

I look at my notebook. This was what she wanted? 

I look back up. She’s gone.

All right. I’ve accepted that Farrah’s basically a mirror of my own emotions most of the time, and if everything about her says, “Write now now now,” then I guess now is the time.

… 

Writing the schizophrenia fiction piece I’m working on is hard at times. There’s a lot of me in it, even more than in most of my fiction, and in a trippy, intimate way. There’s a lot of Farrah in it, too—even more literally. I give her the same role in the schizophrenic main character’s life as she has in mine. So now she’s not only my schizophrenia tamagotchi, but one of my characters.

And my characters, like Farrah, have minds of their own to an extent. Many authors think of it like that, but for me it’s even a little more true, I think. My characters jump ahead of me both in plot outlining and in daydreams that slip away from me. I fade into a somewhat omniscient position in their world and often find it hard to come back whether I want to or not. When I do, it’s often disorienting, especially if I totally lost track of the real world and snap back abruptly due to the doorbell ringing or dissociation suddenly clearing or such. My world, the real world, goes away entirely, and here I am in theirs, less and less in control the longer I stay in and the emotionally deeper I dive. 

It’s kind of like Ahtohallan in Frozen 2. You can go deeper and deeper into this world of sensations and memories that are not your own. To a point, you can get back out, though the journey back gets longer and longer. After a point, well: 

“Dive down deep into her sound

But not too far, or you’ll be drowned” 

So what does it mean now that Farrah—originally, and, still, a recurring hallucination—is now a character in one of those worlds my mind vanishes to? Does she get to play a double role in my psychosis, not only entering my world—which my characters generally don’t—but finding me trapped in one of hers? Is that why she beckoned me to the notebook—like asking me to come home? 

Usually, when I write, it’s taking something only I can see—the story in my head—and turning it into something other people can read. It’s creating—Real from Not Real, in a way. Completely imaginary concepts floating through my brain turn into hundreds of pages I can hold in my hand. It’s not making the story Real, but making that dreamscape in my head widely accessible, like handing out a key, a map—in the form of a book.  

But if I take something as deeply Not Real as Farrah, and give her that quasi Real form… does she become any More Real? What if other people can know Farrah, too—by the power of words on a page? Does that make her less just a quirk of my brain chemicals? Someone saying that they hallucinated Harry Potter, for instance, would be much easier to communicate with than someone hallucinating some boy with round glasses and a lightning shaped scar who could do magic, with seven books’ worth of story that only they could see. At that point, we might not share the exact vision of Harry—but I sure have a clue what they’re talking about, and the seven years of magic seems a lot saner. 

When I write and get feedback, people tell me their thoughts on my characters. They might have a different opinion than me about their moral stances, or a slightly different picture of what they look like. They might even go off and have them in their own daydreams, their own versions of them that don’t just follow the script, but are based on their identity more than their role in a plot. People tell me about gasping when my characters are surprised, holding their breath when they’re afraid, crying when they’re upset, developing crushes on their love interests. 

These characters aren’t just concepts in my head at that point. They’re out there in the world and I can talk about them with other people the way I talk about people I know in real life, or about Harry Potter. It’s not uncommon for my wife to walk into a conversation I’m having with my writer best friend and ask, “Wait, are we talking about real people?” (The answer is usually no.) 

So what about Farrah? If I make her just as accessible as any character—if others can talk about her like someone they know, or like any known fictional figure—is seeing her saner now? Is her identity something like a socially acceptable shared delusion, when we can both hold the key to her world in our hands?

If she got as popular as Harry Potter? Probably.

The Stories We Tell Ourselves: Narratives, Trauma, and My Childhood Dog

My wife told me that her version of the story starts here:

We’re sitting in the car, driving to my dad’s house. We’re passing the Walmart and the AC is fighting the Vegas heat, the stifling air quality two days after the Fourth of July. She takes my hand. “I’m sure it’s fine,” she says, then grimaces. This is a validating aha moment for me at the time—she has doubts. Later, she says she regretted the words the moment they were out of her mouth. But what if it’s not fine?

But for me, the story doesn’t start in the car.

As a writer, I like to start in the height of the action—I would open this story with me standing over the body.

But that’s not where my real version of the story starts. The one I tell myself on long walks and long nights like a lullaby.

No; the story starts with Ziva.

Ziva came to me as an awkward looking Dutch Shepherd puppy as I was finishing the fifth grade and embarking on the terrifying journey that is middle school.

She stayed with me through panic attacks and psychosis, self harm and delusion, lost chances and bad breakups, my parents’ divorce and leaving school several times over.

When I’d attempted suicide at seventeen, my best friend’s mom, a psychiatrist, told me I had to hang in there because Ziva would never understand why I left her.

So I hung in there.

Ziva, however, passed in the spring of 2019. I had a lot more, or understood I had a lot more, to hang in there for by then, and hadn’t felt like I’d been just hanging in there for years; no cutting, no attempts. I was in the relationship of my dreams and surrounded by people who loved me.

But one morning, a few months later, Ziva came back to me in a dream.

In the dream, I was in my childhood home. My dad’s house, at the time, in reality. Ziva entered through a burst of white light.

I understood in the dream that she was dead, but in the grips of sleep, believed that she had come back to visit me. She wagged her tail and spun around. I gave her lots of scritches and told her all of the things I could want to say.

But Ziva kept looking back at the white light she’d come from, antsy. Like she was trying to tell me something. Maybe that she had to go again. I let her run back into the light. I woke up.

That morning, it became clear no one had heard from my dad in some time.

That morning, we were in the car. “I’m sure it’s fine.”

That morning, I stood over the body, and wondered if something in me had already known.

I tell myself the story a lot.

Ziva. The messages with my mom. Why were heat sensitive packages piling up propped against Dad’s unopened front door for days? Why had he not put the trash bins down at the curb on trash day? Sitting in the car. Knocking. Using my spare key to open the door. Thinking that I am the only one with a spare key. Mom, now his next door neighbor, was thinking of checking on him when she got back from an errand. I have the key that was hers. Yelling for Dad in a house where I am the only thing living. “Hey, Dad! Anyone home? Daddy!” Walking back out, down the stairs, swearing I will not hand the key to anyone else who’s not a professional.

It’s not fine,” I tell my then-girlfriend, now-wife through the passenger window of her car. She’s confused, not having gathered from my demeanor that it’s not fine, though I’m not making much sense verbally. “There’s this thing in my dad’s bed. It’s not my dad. But… I think it used to be.”

I had left the door open behind me, the key more about blessing than physical entry. The smell wafts out of the house. She gets it.

Calling my mom. How do I tell her? She is out at lunch with Grandma, on break from considering puppies at an adoption fair. Calling 911. “No rush, I guess.” Enough firefighters for a calendar, who just keep offering me water while I try not to puke on the lawn. Police, and a report hand written at my mom’s kitchen table. What can I say?

I call my best friend in the bathroom. “My dad’s, kinda… dead. I think he’s… been dead, for a while now.

Grandma tells me, “Oh, Hannah, I just knew something wasn’t right. I just knew it wasn’t right when he didn’t put the trash bins out that week…”

The coroner. “You look really young,” she tells me over and over.

Twenty-one,” I say, unable to think of anything else.

And a counselor who is so high empathy I think she might now be having a worse day than I am.

First we have to identify him,” the coroner is explaining to my mom, as we fill in details.

You can’t just…?

It’s not… really… a visual thing.

Well, what about fingerprints?” My mom loves crime shows. She knows how they ID a body at various stages.

This isn’t really…” The coroner is trying to be gentle here. She looks at me, the known witness. “This isn’t really a ‘fingerprints’ kind of situation. Do you maybe know who his dentist was? For the records?

My mom has a white knuckled grip on my hand. The volunteer counselor looks like she might cry.

After the coroner leaves, my mom examines a picture she took of my dad in his youth, in a collage frame in her room. He is victorious, standing on a rock at the end of a long hike, arms thrown to the sky. Yosemite at sunset is the backdrop, their favorite beautiful place, the place they met, lived, worked, and fell in love.

Cheers,” my mom says to the sky, to the picture of Dad, holding up her gluten free beer. Some of Ziva’s toys still line her floor.

I think parts of the story have been compromised by time—my private game of telephone. Other parts, by flashbacks, by nightmares, by hallucinations—all blurring the narrative.

Sometimes I try to change it. I don’t start with Ziva. I go back to the day my father almost certainly actually died. Ten days earlier. We’re sitting on his couch. I’m in the neighborhood to bring in Mom’s mail and check on a few plants while she’s on a trip with Grandma, pick up a few items I left when I moved out.

I visit with Dad. We sit on his couch. He says he has a headache. We talk about anything. He says he doesn’t think that anyone really kills themselves. Evolution wouldn’t allow it. Depression is what kills them. The parasite that pulls the trigger—that’s not you.

But that adds up to the beginning of a very different story.

My father didn’t kill himself. I shook the pill bottles on his nightstand, all as full as they come. I looked for a note and found nothing. I found his guns stowed safely in his closet.

No, my father had a heart attack.

And I cannot quite bring myself to tell the story that’s not so neat, that has false leads. I always come back to starting with Ziva, with the narratively neat omen.

But that’s not how life works.

In one of my writing projects, a character with PTSD seeks and gets a chance to watch video footage of one of the most traumatic events in her life.

It’s re-traumatizing to watch, but she’s obsessed with what details the following flashbacks, nightmares, time, retellings, and additional trauma have blurred.

When asked if seeing the “truth” made her feel better, she says it’s complicated.

I understand that. The sequence is definitely something born of my own emotions.

I wonder what I would do if I had the same opportunity.

Really, I know I could never resist. I know it would be traumatizing all over again. I know my final answer would be it’s complicated.

Still.

I have three basic PTSD nightmare templates that seem to cycle on a loop, though inconsistently.

In one, we’re moving, or buying a rental property. In any case, we’re touring a house, sometimes empty, sometimes model home. Either way, there’s always a bed in one room with a corpse in it. And it’s never addressed in the dream, really. A sigh of, “We’d have to get a biohazard team in again… the ozone machine…” as if we’re fixing a plumbing issue.

In another, someone dies, and it’s dramatic but often off screen. It’s emotion based, a montage of the trauma, grief, and logistics to follow. Pro se probate court and handling of possessions, telling people, paperwork, and the talking, talking, talking. I’ve been through the process enough. Dad. Later, Grandma, too, lies, lays, all too still in her bedroom, but it’s been minutes, not days, and family talks around her.

In the most common dream, though, I’m talking to my dad. Sometimes someone else, but most often him. Sometimes he prods me to remember something. Sometimes, it hits me all on its own. “You’re dead,” I’ll remember, often aloud, in the dream. And he’ll immediately decay, turning into the ten day old version of his corpse.

I can run down the templates easily. I’ve done it so often, my best friend had a nightmare identical to the third version, though they never met my father, dead or alive, just heard about a hundred versions of this dream. They woke from it once in the way I’ve woken from it a hundred times: bolting upright, in a cold sweat, panting, shaking, and desperately trying to scream.

Narrative therapy is supposed to address these stories we tell ourselves. And stories can be therapeutic. After that long, awful day, nausea fading to the realization I’d had only a smoothie that morning, when offered any choice I wanted—“You found your father’s ten day old corpse today. You can pick the restaurant.”—I chose Panera, because that’s where I used to go every Tuesday, for the local National Novel Writing Month meetup, to talk and write and eat and get lost in stories like the rest of the week hadn’t happened, which always made it feel safe.

And by editing those stories, we edit our outlook.

There’s a lot of potential I see here, as a mentally ill writer.

Change the narrator—cue empathy.

Change where it begins—add context.

Change the focus—change the moral of the story.

Change where it “ends”—add hope.

Changing your fate is a common theme in fiction.

I don’t feel like the story I tell myself really has an ending. It fades into other thoughts at various points. Probably for the best.

But soon enough, I always find myself back at the beginning: with Ziva.

Assorted Illnesses and Language (A Conlang Concept)

As someone into grammar and linguistics, who debates the requirements of a split infinitive and the correctness of implied antecedents and whether you can punctuate dialogue with semicolons, for fun, language is in my head a lot. 

As someone with schizophrenia, not to mention autism, language gets messy. 

I’ve pondered making a mini conlang based on superlatives. 

Tired, tireder, tiredest. 

The thing is that the difference between “tired” or “very tired” or “sleepy” or “exhausted” can mean very different things to lots of people. 

To me, “exhausted” clearly meant, “I am about to fall asleep on my feet and it is hazardous for me to stand up.” I found out that apparently, other people use exhausted to mean what I call pretty sleepy—a strong urge towards going to bed as things got hazy. 

Additionally, I separated mental and physical energy in a way a lot of people apparently do not. I can be ready for a long, productive writing session while barely able to sit up. Much less frequently, on the other side, I can be nonverbal and ready to run a mile. Their correlation is low if not nonexistent. 

Plus, it can be hard to describe things that are incredibly subjective or an uncommon experience. How dissociated are you? How intrusive are the hallucinations? How bad is the sensory overload? This isn’t a new problem—say, pain—if you’ve ever been to a doctor’s office, you’ve seen a chart of smiley faces and numbers desperately trying to solve it.

So I pondered a sort of mini loglang that would use some extremely simple ways to describe certain spectrums, to be used between me and people its relevant to. I faced the reality that they would go “which one was that word again?” and I would tell them the definition, which meant I should just start with that definition. It still might be useful for journaling or something, and it’s still in my mind. 

Say, tired, tireder, tiredest, sleepy, exhausted, mental and physical energy. 

It could be given a rating system, maybe 1-5. 

MentalTired1—messing up a few words now and then, a bit slow to catch hidden meaning or jokes, not coming up with brilliant ideas. 

to

MentalTired5—nonverbal, and non responsive to language input.

or 

PhysicalTired1—notable muscle fatigue, depending on cause, might be slightly short of breath/sweating. 

to 

PhysicalTired5—it is hazardous for me to be sitting up unsupported; will be unconscious shortly. 

Etc. 

There’s also the kinds of overlap—mental distress that creates physical symptoms. Anxiety and muscle tension, nausea, chest pain. Depression and lethargy. Hallucinating and dizziness. Sensory overload and headache. Things that can be hard to explain in English if you have only ever experienced the symptoms independently, or only the physical side. 

When tested for diagnosis, I took an IQ test, which I don’t find to be the one true measure of intelligence or all of what it’s sometimes made out to be, but it was interesting, and an example here— 

My verbal reasoning? 130. 

My spatial reasoning? 92. 

I’ve written millions of words of fiction in my life, never gotten a B in English, but I both miss doorways for walls and still have to do the L thing with my hands to find left and right on a daily basis. 

The difference between skills like that also influences how some days I can write a book but not sit up. 

When those physical and mental lines get blurry and when adjectives don’t describe symptoms, language gets tricky. At least English—I may have to look into others. 

What seems like a long time ago, I pondered going into a very specific form of being a therapist as a career based on what I would call conlang therapy—like art therapy, but creating with language. While being a mental health professional is not for me, and I have no idea if that as a therapy type would’ve been really feasible, it was an interesting concept. 

Words make people feel powerful. It’s why we reclaim slurs, cling to favorite quotes and lyrics, wear some labels with pride. 

Surely there’s something to a therapy practice of building yourself up by making language that has failed you, work for you. 

Just a thought. 

Knowing Your Mind Is Vulnerable, and What You Do About It

I’m writing. It’s going really well. Pages and pages of ink in my beloved dot grid Moleskine. So many pages, I think to comment to friends about my comparatively unpretentious but equally beloved Bic pen that has somehow lasted me almost sixty total pages, plus about half of my previous Moleskine, and months of Word of the Day Post It notes, mailed letters, and other miscellany. I included a picture of the inside of the front cover of my notebook, a gift from my fiancee, with that inside cover inscribed by her at the spot we met on the second anniversary of it, a callback to our first conversation—notebooks. 

I write; I take a break to clean a few things when my back complains about sitting. I end up sitting on the bed and reading Writers on Writing, a New York Times essay compilation recommended from a workshop class. I go back to writing at my desk. It flows. Something else I can’t place my finger on keeps catching my attention. I put noise canceling headphones on that I’m borrowing from my fiancee, with a bit of Harry Potter themed ASMR with splashing water and bubbles. I remember putting them on and realizing how much white noise was in my brain for the first time as hallucinations worsened. Something keeps drawing my eyes. I think it’s black—a prominent color in my most terrifying recurring hallucination, but it’s not that—yet, at least.  

Maybe it’s the cat. Our fanged black cat naps on the bed. But every time my eyes dart to her, she’s still, not eye catching. The legs of my desk, the fabric drawers, my space heater, my knee socks, my desk chair, my computer screen fully dimmed since I’m just using the device for the ASMR—something black. It keeps coming in the corner of my eye. I turn on my task lamp, also black, but hoping the light will dispel some shadows. The other cat, a tortoiseshell, naps in the rope hammock swing, encased in my white canopy and starry string lights. 

My fiancee comes and asks if I want anything downstairs while she’s going. More black in the corner of my eye at first—her usual attire. I do a double take. No, she’s there. Water, I say.  

I get the words down a little faster, not sure how much longer they’re coming for. I’m behind on words for Camp NaNoWriMo, hoping for my tenth win of 50,000 words or more in a month—one past win being the 100 pages for the sister event for scripts—and I’m not sure yet how many words are actually on the page without the convenience of a computer’s word counter, having not typed them up. There are plenty of words crossed out for better ones, and random notes about the story or about things to add to the shopping list, places my handwriting ceases to know what a space is. If I don’t write now, with the first signs of my mind fading for a while, I’m probably not going to anymore today. 

She comes back with the water and leaves. The cat goes off to explore. 

I wish my hands moved faster or my characters got to the point faster. “I’m rambling,” one of the characters confesses. Yes, you are, I think at her, hands twitching. The black cloud seems to be flashing in and out faster. I should just write down a summary of the rest of this scene in case I don’t get to it. The chapter outline lives on my computer, a picture of my whiteboard and some added notes, but it’s missing snippets of dialogue and action that have just come to me as I approach them. I add more notes; I can’t seem to hold them in my head well anyway. I sense humanoid movement, which means it’s probably heading down the PTSD road; I keep seeing it in the mirrored closet doors next to my desk; I have that distinct sense of something behind me and turning around clears it for only a moment. 

It’s strange to worry about not being able to think. Day to day, it means not holding where this scene is going only in my head, just in case my mind goes mostly out for a few hours and comes back without those ideas. It means a bit of an obsession with certain paperwork. 

To be fair, reading Five Days at Memorial would give anyone an obsession with living wills, and I’ve gone and succeeded pro se in probate court with no will recently enough to have it in mind. Those aren’t really the papers I’m worried about yet. 

Right now, it’s mostly a piece of paper in the back of my notebook, my little “SHTF” paper. The sort of things I wish I had written down before the blur of my one abrupt psych ward stay, when I’d abandoned having such a note for a while. Emergency contacts. Basics.

Cat—a black blob in the bed—no, she’s on the carpet now—the blob flickers out. I glare at where it was, mostly over knowing I can’t see my psychiatrist for over three weeks to keep it flickered out. 

I called my psychiatrist first thing Monday morning after I committed to calling, because I’m psychotic but not irresponsible—fear of irresponsibility due to my mind fading out perhaps fueling those papers and other things. 

I put the appointment on one of my multiple Google Calendars. My fiancee once said I run my life like I’m a startup CEO rather than a housewife writer with some real estate. I might just be paranoid. She agrees to drive me to the appointment, if it’s not on Zoom. I don’t drive and while I keep tossing the idea around, I don’t want to one day swerve around a dog that isn’t there, like the one that accompanied me on my walk the other day, holding an also hallucinated leash in her mouth as she trotted next to me like it was helpful, flickering and then fading entirely by the time I got halfway to my destination. 

My therapist has had no luck finding me someone who knows more about psychosis on the therapy side, while I wait on meds, and neither have I. She says the laws apparently changed, according to a coworker of hers, and she’s allowed to treat it now, but no more knowledge qualified than she was before. I’m waiting on some books, library and mail order, my finds and my therapist’s, and enjoying JSTOR’s pandemic discounts, if research is only a grab in the dark for that responsibility and control. One book I’m waiting on is My Month of Madness—a paranoid long shot for usefulness, but autoimmune has definitely been thrown around before, and after months of pain turned out to be a rare manifestation of toxic black mold poisoning once, I try to not dismiss rare diagnoses out of hand. Yet I don’t want to fall into the “letting WebMD convince you that you have a brain tumor” trap.  

So honestly, I am mostly still at waiting, which is a lot of what treatment is. You’d think I’d be better at it by now. Waiting for the black blobs to get too consuming, waiting for my appointment, waiting for books.

I have many virtues, but patience and sanity are not among them. 

On Farrah and Treatment

I swore when my shoulder cramped, which was interesting, because I’d kind of assumed I was nonverbal at the moment, based on the way my thoughts flowed, or didn’t, and a familiar feeling somewhere in my throat, though I hadn’t tested it. 

I couldn’t blame my shoulder for cramping; my disorientation at speaking came with the realization that I’d been lying on my office floor staring at the very bottom of my bookshelves again. 

Against my back, I felt Farrah, my recurring puppy hallucination, slump, and heard her whimper for attention, wet nose near my neck. The theme of the morning’s tactile hallucinations seemed to be—weight. Farrah’s dense little body in my hands, slumping against my back in the same manner the cats did, cold paws pressing at spots on my lap.  

Just to spite my saying to my therapist yesterday that the tactile and visual hallucinations didn’t line up and Farrah teleported away if I tried to get close, the hallucinations started to line up, and she started wanting to cuddle.  

She’d been clingy all morning, and while she didn’t talk, I felt or knew her thoughts in a way that was hard to explain—the way you knew the facts in dreams that were never presented in a sensory manner. She was disheartened by my therapy video chat yesterday that came to the conclusion—I might need to go back on meds. Probably, in fact. 

I’m not trying to get rid of you, was what I thought at Farrah, because this was stupid. She wasn’t real, and so wasn’t sad that I was trying to stop seeing her—and honestly, she was the least of my issues I was trying to stop seeing. Her behavior was just the manifestation of my own mixed feelings about likely going back on meds. 

My old psychiatrist’s office wasn’t open on weekends, though, and there were no calls to be made just yet. So Farrah—claws pattering on the hardwood and somersaulting clumsily down the stairs and getting stuck in the legs of my desk and trying to eat the real cats’ food—kept me company all morning and into the afternoon.  

I found myself editing a picture I’d found online that kind of looked like her, to get the image closer to right, as if trying to appease her—see, you’re not going away, you can live in a picture, I can still know what you look like, even if it’s in a healthier format. 

I also have developed a bit of an obsession with where Farrah came from. I only have two specific recurring hallucinations currently; one is straight out of a PTSD flashback; I’m very aware of where it came from. The other is Farrah. Any others are not coherent enough to be called recurring. Those little imaginary flashes of light, flips of still objects, white noise I can’t pin down. 

The only real dog I see regularly looks, sounds, feels, and acts nothing like Farrah. I can’t figure out if Farrah is my mental manifestation of dog or puppy or golden retriever or… what word my brain might have decided to attach to, that conjured this particular image. I’m not much of a dog person; that’s why my two real pets are cats. Google told me what Farrah meant—I know no real Farrahs and have no personal associations with the name, its origin in a language I don’t speak. I keep staring her down, thinking: Why are you here? 

I get at most a wag of the tail or a yip back. 

It’s a big question for a little puppy that’s not even real. 

Talking about it in therapy was strangely disheartening to me, too, because those closest to me are very used to the quirks of my physical and mental health, or at least know reacting strongly isn’t going to change it. I forget how concerning certain things sound to the average person, and I’d been out of touch with my therapist for a bit there, when I’d been doing well. 

Also disheartening was the fact that, as my psychosis spikes up again, my therapist, an MFT, is not really qualified to treat it. Therapy is not the front line treatment for schizophrenia as it is—medication is. It’s an issue we’ve discussed before. I used to have a second therapist, the psychologist who initially diagnosed me, who my therapist referred me to shortly after I started seeing her in 2015, but the psychologist sadly passed on less than a year later, and I haven’t had that second person to treat that side of my illness since. 

I can write up new medical files and go back to meditation and read more psychology books and call my psychiatrist and go to my current therapist and do some therapy workbook activities and all, and I have—but having a qualified professional to talk to is a good resource.

But, hard to find. The only name my therapist came up with off the top of her head to bring in didn’t take my insurance. I’ve had many nightmare therapists and I’ve had many who were good people who admitted they were in over their heads. The web told me that my old psychologist, the one who passed four years ago, is currently accepting new patients. 

The only real thing to do is maintain routines and wait, and wonder if it would work if I carried clumsy Farrah down the stairs.